I have been ambassador for Debra Südtirol - Alto Adige, an association which assists sufferers of Epidermolysis Bullosa, since October 2015.
I had been aware for some time of the problems faced by the so-called Butterfly Children who suffer from birth from this condition wich causes the skin to erupt in painful blisters at the slightest touch. For these children the most common everyday activities are never pain-free. Walking, eating and moving all represent a great challenge.
Worst of all, up to now no cure for this genetic disease has been found. The only treatment available consists of costant medication and regular surgery. It is hoped that, with appropriate funding, scientists will develop an effective treatment over the next ten years. In Italy, thanks to associations such as Debra Südtirol - Alto Adige, several new research projects have been launched with encouraging results.
It is a great honour for me to lend my face, my voice and my free time to promote and raise awareness of the plight of the Butterfly Children, their extraordinary families, their supporters and those carrying out research. That is why I support and ask you to support the association Onlus Debra Südtirol - Alto Adige (www.debra.it).